Case story- Master Likhith

On December 19, 2021 Mohan Foundation’s Anudaan Making Transplants Affordable” team received an email from Aster CMI Hospital, Bengaluru requesting financial aid for Master Likhith SD’s liver Transplant, who was suffering from Wilson’s disease with decompensated liver disease and needed an urgent liver transplant. Wilson’s disease is an inherited disorder in which copper isn’t eliminated properly and instead accumulates, possibly to a life-threatening level. 

 

Master Likhith SD, age 8 years hails from Sindigere village, Chikkamagaluru, Karnataka. He belongs to a poor family. His father is a farmer, and also teaches the school children in his village. He goes house to house for giving tuitions. The child had health related issues such as fluid accumulation in his abdomen (ascites) and loss of appetite. He started to lose weight and was having on and off fever. The father was earning about Rs. 20,000 per month (which came from his agricultural land and teaching school children) but during COVID 19 pandemic, the family income took a massive hit. In addition, they also had to borrow money from relatives and friends for Master Likhith’s treatment. With the meagre income of the family, it was very tough for them to pay a huge cost of Rs 15 lakhs for their beloved son’s liver transplant.

 

At St. John’s Hospital, Bengaluru, the doctors informed the parents that child suffered from liver disease and referred the family to Aster CMI Hospital. After physical examination and tests, it was found that Likhith was suffering from chronic liver disease. The doctors informed them that their son needed an urgent liver transplant. A couple of tests later, the mother found out that she was the potential liver donor for her son and that she would be able to save her son’s life by donating a part of her liver. The sign of relief was for a short time as the hospital’s estimation for transplant came around Rs. 15 Lakhs. 

 

After the parents discussed about their poor economic background, the doctors at Aster CMI Hospital informed them about MOHAN Foundation’s Anudaan. This information gave them a new hope and confidence. With the support from Anudaan, few other NGO’s and the hospital concession on transplant cost, Master Likhith successfully underwent a liver transplant on the December 28, 2021. MOHAN Foundation sanctioned Rs 2 Lakh for his liver transplant.

 

Both mother and son are recovering well. Likhith is now very happy to receive a second life and he is excited for his future. His ambition is to become a cricketer and play for his country, India.

“Lots of gratitude to MF’s Anudaan team for saving our son’s life with their financial support. We are impressed by their good and lifesaving work”- Mr S.D. Dhananjay- Father

Case story- Kashi Nath Dixit (Corneal Transplant)

In November, 2021, MOHAN Foundation’s “Anudaan- Making Transplants Affordable” team received an email from Niramaya Charitable Trust, Gurugram, Haryana requesting financial aid for Mr. Kashi Nath Dixit’s corneal transplant. 

Mr. Kashi Nath, age 70 belongs to a poor family in Deoria, Uttar Pradesh. He is a retired serviceman who used to work as a support staff in a private firm. His story began in the month of November, 2020.  One day, he realized something was really wrong. He started feeling pain on his left eye, cloudiness and burning. His family contacted an eye specialist in Deoria, Uttar Pradesh and was shocked after hearing the news that Mr. Kashi Nath was suffering from serious corneal perforation which is an anomaly in the cornea resulting from damage to the corneal surface. A corneal perforation means that the cornea has been penetrated, thus leaving the cornea damaged. The doctor informed the family that Mr. Kashi Nath’s eye condition was critical and he was in an urgent need of corneal transplant. Thus began his journey through not one, but three excruciating corneal transplants in his left eye.

The family initially opted for eye treatment and medicines to get rid of his eye pain but unfortunately, Mr. Kashi Nath’s eye condition was not improving. So, the family decided to visit another affordable eye hospital. Mr. Kashi Nath’s eldest son, who works as an auto driver in Faridabad, Haryana was informed about Ahooja Eye & Dental Institute (AEDI) in Gurugram for better treatment of his father. 

By the time, Mr. Kashi Nath underwent his first transplant in June, 2021 at AEDI, he was experiencing pain and vision deficiencies demanding that his life revolve around his worsening eye condition.  The pain was constant and he experienced daily headaches and eye exhaustion. His eye condition touched every facet of his life: his personal life, his children, his job, his social life and his ability to remain physically active.  He was anxious to have the procedure, get through the recovery and return to living his life the way it was before.  

Two weeks after surgery, Mr Kashi Nath’s family was informed by the doctor that his new cornea was not responding or functioning as expected.  At two months post-surgery, his transplant was deemed unsuccessful and a second transplant procedure was recommended.  In August, 2021, he underwent his second corneal transplant at AEDI. Thus began his second round of recovery complete with multiple applications of anti-rejection eye drops and high hopes for success. Unfortunately, Mr. Kashi Nath’s left eye vision was not improved and he again suffered from eye pain and irritation.

After taking medicines for some months, it was decided by the eye specialist at Ahooja Eye & Dental Institute that Mr. Kashi Nath had to undergo another transplant. By that time, the family’s budget for the treatment had finished and they could not afford to pay for the third transplant.  That is when, they discussed with the doctors that they did not have money to pay for the transplant and they needed financial support. Ahooja team then connected the family to their trust, Niramaya Charitable Trust, where they could receive some help. Niramaya team informed the family about MOHAN Foundation’s life-saving initiative Anudaan-“Making Transplants Affordable”. The family and Niramaya trust approached Anudaan team for financial Aid. 

Mr. Kashi Nath Dixit was supported for his third corneal transplant. Anudaan contributed Rs. 20,000 for the transplant which was successfully performed on 06-11-2021. Mr. Kashi’s left eye vision is slowly getting better and the new cornea is clear with no cloudiness, best of all, no pain! He is hopeful for his future and to do things which he likes the most after he recovers such as watching news & cricket and doing agricultural work.

 

 ‘Thank you so much MOHAN Foundation to support my corneal transplant and changing my life forever.’- Mr. Kashi Nath Dixit

I have no words to express my joy and gratitude. With support of MOHAN Foundation, my father underwent corneal transplant. I want to congratulate the foundation for their life-saving work. May the foundation continue its extraordinary work and supporting underprivileged people like us.’- Sailesh Dixit, elder son of Mr. Kashi Nath

 

Case story- Rukman Ahirwar (Corneal Transplant)

In November, 2021, MOHAN Foundation’s “Anudaan- Making Transplants Affordable” team received an email from Niramaya Charitable Trust, Gurugram, Haryana requesting financial aid for Mrs. Rukman Ahirwar’s corneal transplant. 

Mrs. Rukman Ahirwar, age 70 belongs to Chattarpur, Madhya Pradesh. She has struggled so much in her life. She has been widowed for many years. Her husband passed away in 1993. From raising four children alone to taking care of her home and small agricultural land, she has done it all single handedly. Her youngest son is the sole earner in the family who works as a daily wage labourer.   She had been suffering from a corneal eye condition called cataracts. A cataract is a layer that has grown over a person’s eye that prevents them from seeing properly. Her left eye cataracts has resulted in serious sight loss and has affected her ability to work and be independent. 

Mrs. Rukman’s major eye complications started in January, 2021. She suffered from left eye pain, irritation and cloudy vision. After getting medication for some months, she was taken to a local eye clinic in Chattarpur, Madhya Pradesh. After few eye tests, it was found that she was suffering from a serious eye syndrome called cataracts on her left eye. The family was in shock when they heard about it.

There was no sign of improvement in Mrs. Rukman’s eye condition after several visits to local eye clinics and medications. Her left eye vision had completely vanished and eyeball stopped moving. The family was frightened to see her condition. The family had already spent huge amount of money in her treatment and lost all hopes.

Mrs. Rukman’s youngest son, who works as a daily wage labourer in Rewari, Haryana was informed about Ahooja Eye & Dental Institute in Gurugram for affordable and better treatment. He brought his mother to Gurugram and after few check-ups, the family was informed by the eye specialist at Ahooja Eye & Dental Institute that Mrs. Rukman was in urgent need of a corneal transplant as her eye condition was critical. The family informed Ahooja team that they had spent all the money they had in Mrs. Rukman’s eye treatment and that they could not afford to pay for the transplant. The family was informed about Ahooja Eye & Dental Institute’s trust, Niramaya Charitable Trust. 

Niramaya team approached MOHAN Foundation’s Anudaan team for financial aid to support Mrs. Rukman Ahirwar’s corneal transplant. Anudaan team contributed Rs. 20,000 towards the transplant which was successfully performed on 02-11-2021.

 

“I am thankful to MOHAN Foundation for supporting my corneal transplant and giving me a gift of sight.”- Mrs. Rukman Ahirwar

“Thank you MOHAN Foundation for all your support. It is great

Case story- Master Devyansh Dev

On October 29, 2021, Anudaan- Making Transplants Affordable” team received an email from Max Super Speciality Hospital, Saket, New Delhi requesting financial aid for Master Devyansh Dev, diagnosed with Extrahepatic Biliary Atresia (EHBA), an inflammatory sclerosing cholangiopathy, which is the leading indication for liver transplantation in children. Devyansh required an urgent liver transplant and given the fact that family wasn’t well off, the hospital undertook to support the transplant by raising funds for the same.

Devyansh, age 6 months hails from Madhubani, Bihar and belongs to a low-income family that could never afford such an expensive transplant, without the support provided by ‘Anudaan – Making Transplants Affordable’. Devyansh’s father works as a social worker, earning a meagre salary which is not enough to pay even for the family’s living expenses.

“Losing a child is every parent’s worst nightmare. I never imagined I would have to stand by helplessly as my son fought for his life,” the anguished father said. Devyansh was born healthy, weighting 4 kgs and nobody could have ever imagined that after a few days, he would be experiencing the most painful journey to undergo an intense liver transplant. When he was just 15 days old, his eyes and body started turning pale with intermittent fever and his stomach started to swell. The parents immediately rushed to   Sewa Sadan Hospital in Darbhanga, Bihar, where he was admitted for 5 days. He was kept on a ventilator and tests were performed. Unfortunately, there was no improvement in his health. The lockdown due to corona pandemic worsened the family’s situation. There were fewer doctors and staff at the hospital and limited services due to lockdown which affected Devyansh’s health.

As advised by some senior family members, Devyansh was taken back to his hometown. Some family members thought that ayurvedic home remedies could improve his health but his health was getting worst day by day, so the parents decided to take him to a well-known hospital for children in Darbhanga. They went to Jai Maa Shishu Seva Sadan, where they received a shocking news that their son was having some serious problem with his gallbladder and that it had to operated soon to avoid further infections. The tiny infant had to bear the terrible cuts and pain. After few days, Devyansh was discharged from the hospital with a hope that his health would improve. “I was filled with relief when he was discharged. Since the day he was born, I have been a wreck, and anxious about my baby’s health. I thought the worst was behind us when we were told he was fit to go home.”– father said.

After 3 months, Devyansh’s health again started deteriorating. He was then taken to Ramwati Nursing Home, Patna, where few tests and liver biopsy were done. The parents were informed that their son was suffering from chronic liver disease and needed immediate liver transplant so that his life could be saved. The parents were stunned! 

He was referred to AIIMS, New Delhi for further treatment. The doctors informed that Devyansh was diagnosed with Biliary Atresia and there was no other treatment to improve Devyansh’s health condition. The parents were also informed that liver transplant was the only option to save their son’s life. The cost of the transplant was estimated to be around Rs. 19.5 lakh, which was beyond the family’s financial limit. During the discussion with the doctors at AIIMS, the parents came to know about Max Super Speciality Hospital, Saket, New Delhi, where they could receive some hope and financial support for their son’s liver transplant.

Devyansh was taken to Max Super Speciality Hospital, where the parents had a discussion with the Senior Consultant, Pediatric Neonatology about their son’s health condition and their financial status. “After spending all our savings on his previous medical bills, we no longer have the means to help our son. We are afraid that we are going to lose our baby before even his first birthday. We need your support to save his life. Please, help us before it’s too late for our little boy.”-parents requested the doctor. They received positive response and were informed about crowd funding and MOHAN Foundation’s Anudaan for financial support for the transplant. 

MOHAN Foundation contributed Rs. 3 Lakh for the transplant and with the support from few other NGOs and Max hospital’s subsidised transplant cost, Devyansh successfully underwent a liver transplant on December 31, 2021.

Both Devyansh and his mother, who happily donated a portion of her liver to his beloved son, are recovering well. His body has accepted the new organ. All his reports so far have also been showing positive progress. The parents are excited to see their son growing and enjoying his childhood. They have a desire that their son joins Indian Army one day so that he could serve his country in a same way as he received support and blessings from well-wishers from different parts of the country.

“We are extremely grateful to MOHAN Foundation’s Anudaan team for all their support.”Jyoti Gupta, Mother.

“Thank you so much MOHAN Foundation for supporting our son’s liver transplant. May your Foundation continue to grow and keep helping underprivileged people like us.”Rajiv Prasad Gupta, Father.

Case story- Master Addwikh Tejj

 

On December 13, 2021, Anudaan- Making Transplants Affordable” team received an email from Manipal Hospitals, Bengaluru requesting financial aid for Master Addwikh Tejj, who was diagnosed with liver cirrhosis and decompensation. He was in need of an urgent liver transplant. 

Master Addwikh Tejj, age 5.8 years hailing from North, Bengaluru, belongs to a poor family. His father works as a civil work labor. Due to poor economic condition, the family could not afford the huge cost of their son’s liver transplant.

In August, 2021, Addwikh started experience drastic changes in his health. He frequently started to fall sick. Abdominal swelling, fever and paleness were the major issues that he was facing. His parents were frightened to see their son in such a terrible state. They immediately rushed to a local child specialist, where Addwikh underwent several health checkups and blood test. “What was happening to our son all of a sudden? He always seemed to be normal and healthy.”-father said with a baffled voice. 

Addwikh was diagnosed with jaundice. The parents were informed that his liver was getting infected and with proper medication, he would recover well but unfortunately his health was not improving. He was continuously falling sick, having fever and stomach pain. He was then admitted to another local hospital from where he received treatment for 4 weeks. 

Since Addwikh’s health was getting critical day by day, he was referred to Manipal Hospitals, Bengaluru. After few tests and liver biopsy, it was announced by the doctors that the child was suffering from liver cirrhosis and needed an urgent transplant so that he could survive. The parents were shocked to get this information. They could have never imagined that their son would be diagnosed with a chronic disease.

Addwikh’s mother was found to be the perfect match to donate a portion of liver to her son but collecting huge amount, i.e, Rs. 15 lakh for the transplant was a big challenge for them. They were then informed about MOHAN Foundation’s Anudaan for financial support. The hospital also assured that they would give concession on the transplant cost. The parents were excited and overwhelmed by the positive response and support from the doctors at Manipal Hospitals. A few other NGOs also contributed funds towards Addwikh’s transplant.

MOHAN Foundation sanctioned Rs. 1.5 Lakh for Addwikh’s liver transplant. He successfully underwent liver transplant on December 24, 2021. He has been doing well since the transplant and is recovering fine. 

Addwikh has been a jovial and fun loving child. Since childhood, he is fond of cars and bikes and that’s why he wishes to be adventurous and wants to be a biker so that he could travel the world and gather new experiences.

“I will be grateful to MOHAN Foundation for lifelong as they have saved my son’s life with their generous support.”V. Lavanya, Mother

Case story- Baby Deeksha PS

On August 31, 2021, MOHAN Foundation’s “Anudaan- Making Transplants Affordable” team received an email from Aster CMI Hospital, Bengaluru requesting financial aid for Baby Deeksha’s liver transplant, who was suffering from congenital hepatic fibrosis and needed an urgent liver transplant. Congenital hepatic fibrosis (CHF) is a rare disease that is present at birth (congenital) and affects the liver.

Deeksha, age 7 years hails from Channagiri, a town in Davanagere district Karnataka. The family is poor. Her father works as a bus driver in a private college. But after the covid-19 pandemic started, their family income took a massive hit. They were surviving on their savings. With the meager income of the family, it was very tough for them to pay a huge cost i.e., Rs. 15 Lakh for Deeksha’s liver transplant. 

“Nothing is more valuable than the life of my daughter. My husband and I gave away everything. Everything! We have been in the hospital for many weeks now. And there’s hardly any money to afford medicines, let alone an expensive liver transplant. What do I do now? Can a parent let their child die because they don’t have money? I’ll beg if I have to, I just want my daughter to live!” said the devastated mother.

It all started some months ago, when Deeksha was crying a lot and there was blood coming from her mouth. The parents felt like they were trapped in the worst nightmare. They immediately rushed her to Aster CMI Hospital, Bengaluru, where the doctors immediately performed several tests. “My husband and I ran from one corner to another as we only had nearly Rs.600 at the time. So, we immediately made phone calls asking for help.” mother said.

After proper health examination and tests, it was found that Deeksha was suffering from chronic liver disease. The parents were shocked to hear the earth-shattering news. “Deeksha needs an urgent liver transplant. Her liver failure won’t let her live long. It will affect other organs and even her brain at some point. To prevent that, we must make no delay in the liver transplant,” the doctor explained to the parents.

A couple of tests later, the mother found out that she was a perfect match for her child and that she will be able to save her by donating a portion of her liver. But that sigh of relief didn’t last long. The estimated cost of the liver transplant was Rs.15 lakh. 

After the parents discussed about their poor economic situation, the doctors at Aster CMI Hospital informed them about MOHAN Foundation’s Anudaan. This information gave them a new hope. With support from Anudaan, few other NGOs and the hospital’s concession on transplant cost, Baby Deeksha successfully underwent a liver transplant on October 19, 2021. MOHAN Foundation sanctioned Rs. 2.5 Lakh for her liver transplant.

Both mother and daughter are recovering well. “Police officer, mumma. I will be joining the police,” Deeksha would say. Her ambition is about serving the society. 

“Lots of gratitude to MOHAN Foundation’s Anudaan team for saving our daughter’s life with their financial support. We are impressed by their good and lifesaving work.”-Mr. Prasanna Kumar P, Father.

Case story- Master Aryan Kumar

On September 22, 2021, MOHAN Foundation’s “Anudaan- Making Transplants Affordable” team received an email from Max Super Specialty Hospital, Saket, New Delhi requesting financial aid for Master Aryan Kumar’s Liver Transplant, who was suffering from liver cirrhosis and needed an urgent liver transplant.   

Master Aryan Kumar, age 6 months, belongs to a poor family in Shahbad Dairy, North West Delhi. His father is the sole breadwinner in the family, who works as a field boy in a private company, earning Rs. 7,500/per month. With the meager income, it is very difficult for him to keep the family going as well as bearing the huge medical expenses of his son. The father donated a part of his liver which was transplanted to his only beloved son.

Aryan’s mother is the real hero of the tragic journey of her son undergoing a successful liver transplant. She used to work as a sales executive in a private firm but she had to quit her job after the birth of her son. “Aryan is our first and only child. We had been waiting excitedly for his arrival for months. I thought the day he was born would be the happiest of my life.”-mother said. Unfortunately, the newborn had to go through lot of suffering and pain.

A few days after his birth, Aryan’s whole body started getting pale. The nurses had noticed that his skin and eyes were pale so they took him to be tested for jaundice.  “I had barely got any time with my newborn when he was taken away from me. I prayed that his condition wouldn’t be serious and the doctors assured me that it was common for newborns to be diagnosed with jaundice.”-mother said with fear. Aryan was shifted to Neonatal Intensive Care Units (NICU). After carefully examined and intense treatment, he recovered and was discharged from the NICU after a few weeks. 

However, Aryan’s condition was deteriorating again. His eyes were still pale yellow and his stomach was slowly swelling more and more each day. He was just 21 days old when he was again admitted to a local hospital but his health was not improving. The parents decided to take their child to a prominent child specialist in Delhi with a hope that their child would receive better treatment and his sufferings would come to an end.

The parents were disappointed again when Aryan showed no sign of improvement. His health condition was getting worst day by day and the parents were terrified and confused about their son’s life. But they did not lose hope especially the mother. She was determined to save her son’s life. After some discussions with friends and relative, the parents took Aryan to a big hospital named Kalawati Saran Children’s Hospital, where the doctor revealed that Aryan had biliary atresia, a blockage in his tubes and it had caused liver cirrhosis. The parents were told that their child urgently needed a liver transplant. Without it, he would lose his life. “I was devastated. I could hardly believe my ears.”- mother said with extreme sadness.

Aryan was referred to All India Institute of Medical Sciences (AIIMS), New Delhi. Unfortunately, there was no improvement in his health and doctors could not find any way to save his life. Then one of the doctors at AIIMS suggested them to visit Max Super Specialty Hospital, Saket, New Delhi. “Aryan is so little and ever since his birth, he has known nothing but suffering and pain. No child deserves such a fate.”

Dr. Vikram Singh, one of the finest Pediatric Liver Transplant Surgeon at Max Super Specialty Hospital gave a new lease of life to Aryan as well as to his parents who left no stone unturned to save their child’s life. Master Aryan had to go through 13 hour long surgery which was successfully completed on September 29, 2021. Due to poor economic situation, the parents could not afford to pay the huge cost of the transplant which was very high i.e, Rs. 16.5 Lakhs. “My husband barely earns Rs 10,000 a month. We spent all our savings on getting him proper treatment and medication up to this point. Now we have nothing left and nowhere to turn to.”- mother said. Dr. Vikram and his team informed the parents about MOHAN Foundation’s Anudaan team for financial aid for Master Aryan’s liver transplant. 

The liver transplant was made possible by the collaborative efforts of MAX Hospital who gave discount on the transplant cost, MOHAN Foundation and few other NGO’s financial contribution. Anudaan Team contributed Rs. 2.5 lakh towards Master Aryan’s transplant. 

Both the father and son are recovering well and slowly resuming their normal life. The mother is very happy to see her son smiling and free from all the sufferings. She is finally learning to enjoy her motherhood unburdened of her constant anxiety. She wishes to work hard and to give Aryan good education. Her dream is to see her son becoming a liver transplant surgeon so that he can save many underprivileged children’s life without any hustle and greed.

“Aryan is my first child and he is so special. Thank you MOHAN Foundation’s Anudaan team for supporting my child’s liver transplant and saving his life”- Mrs. Pinki Kumar, Mother.

“I am very happy now to see my child free from suffering and pain. When my health condition would improve with God’s grace, I would like to donate fund to MOHAN Foundation to support their lifesaving and noble work”- Mr. Devender Kumar, Father.

Case story- Master Kabyaneel Parashar

On September 14, 2021, MOHAN Foundation’s “Anudaan- Making Transplants Affordable” team received an email from Max Super specialty Hospital, Saket, New Delhi requesting financial aid for Master Kabyaneel Parashar’s liver transplant. The child was suffering from liver cirrhosis and needed an urgent liver transplant.   

Kabyaneel Parashar, age 9 months, belongs to a poor family in Darrand, Assam. His father works as an office boy and being a sole earner of the family, it was very difficult for him to afford the huge cost of his son’s liver transplant. In spite of the fact that he could not contribute much financially, he donated a part of his liver which was transplanted to his beloved son.

At a very young age, Kabyaneel had to suffer from a chronic liver disease and had to go through terrible and endless pain. He was born by cesarean section weighing 2 kg. When he was just 9 days old, he was diagnosed with Jaundice. After being treated, he once again got Jaundice when he was 2.5 months old. His health condition was getting worst day by day. He started having high fever, vomiting and stomach ache. 

Since his health was critical, he was admitted to Excel Care Hospital, Guwahati but there was no sign of improvement and the doctors referred Kabyaneel to Narayana Hospital, Bengaluru for further treatment. Unfortunately, he was tested corona positive so he was kept at COVID centre and with critical care and supportive treatment, he recovered.. But after some extensive tests, it was found that the child was suffering from liver cirrhosis and needed urgent liver transplant. 

The parents were stunned to hear that their only son’s life is at risk and transplant was the only option to save his life.  Due to their poor economic condition, the parents decided to go back to their hometown and do the transplant later when they would have borrowed some money from their family and friends as the cost of transplant was beyond their reach. It was estimated that his liver transplant would cost around Rs. 19 Lakh including hospital charges, tests and medicines.

After some days, Kabyaneel started vomiting blood and became very sick. He was again taken to Excel Care Hospital, Guwahati, where he received treatment for a few days and was referred to Max Super Specialty Hospital, New Delhi. The parents received some positive responses from the doctor at Max Hospital. They were informed about crowd funding and MOHAN Foundation’s Anudaan for financial support for Kabyaneel’s liver transplant. The family and the hospital immediately approached Anudaan Team. 

MOHAN Foundation contributed Rs. 2 Lakh for the liver transplant and with the support from few other NGOs and Max hospital’s subsidized cost for transplant, it was made possible for Kabyaneel Parashar to successfully undergo a liver transplant on 24-09-2021. 

Kabyaneel is recovering and slowly resuming a normal life. His mother’s happiness is unbounded when she watches her son playing and smiling.  His parents wish that he becomes a teacher in the future. 

“Thank you so much for saving my child’s life with your financial support”- Mrs. Sumi Kalita, Mother

“I want to express my gratitude towards MOHAN Foundation for offering financial aid for my son’s transplant. Please keep up the lifesaving work that you are doing”- Mr. Mridul Kalita, Father.

Case story of Mast. Goutham BM

On September 16, 2021, MOHAN Foundation’s “Anudaan- Making Transplants Affordable” team received an email from Aster CMI Hospital, Bengaluru requesting financial aid for Master Goutham BM’s Liver Transplant. He was presented to the hospital with acute liver failure, also known as fulminant hepatic failure, which can cause serious complications, including excessive bleeding and increasing pressure in the brain. It’s a medical emergency that requires hospitalization. The child was immediately shifted to ICU as he needed an urgent liver transplant.   

Goutham, aged 3 years, belongs to a poor family in Anantapur, Andhra Pradesh. His mother, Madhulatha G is the sole breadwinner in the family. She works as a coolie, earning Rs. 5,000/per month. With the meager income, it was very difficult for her to take care of the family going as well as bear the huge medical expenses of her son. Goutham was just 8 months old when he first showed signs of illness. His eyes were pale and he complained of stomach ache. His liver had started to fail but with early diagnosis and preliminary treatment at a local hospital in Anantapur, Andhra Pradesh, he was able to recover. But, the mother’s pain didn’t end there. Her husband left her stranded with their only child.

“I stood strong to be both his mother and father. I was somehow managing our expenses and trying my best to put food on the table by working hard as a daily wager. But, the challenges in my journey kept becoming bigger.” Shared the mother, with immense sadness in her heart.

In August 2021, Goutham fell severely sick. He was shaking uncontrollably and his teeth were chattering. At first Madhulatha thought that her son was feeling cold. But, her gut told her that something was not quite right. She rushed her son to the hospital, took multiple opinions but the Gouthma’s health condition did not improve. Goutham was then referred to Aster CMI Hospital, Bangalore. His health continued to deteriorate on their way to the hospital. The 3-hour-long ride in the ambulance felt like the mother’s worst nightmare as she saw her son slip into unconsciousness. Upon reaching the hospital, the doctors told her, that Goutham was having a seizure and needed to be operated immediately and put on ventilator support.

“Every day, it felt like my son was growing distant from me and that I was losing him. No child should have to go through such misery and for so long. I didn’t want to lose my only child… My husband had already abandoned us. His health was deteriorating significantly as a result of this rare disease that was consuming him. It broke my heart to see my son in such pain” Madhulatha said.

 

Madhulatha shared her poor economic condition with the treating team and that she was helpless and could not afford to bear such a huge cost of her son’s liver transplant, i.e. Rs. 15 Lakh. It was simply beyond her means. A ray of hope came to her when she heard about MOHAN Foundation’s lifesaving initiative- Anudaan by Dr. Sonal Asthana, a Senior Consultant of HPB & Liver Transplant Surgery at Aster CMI Hospital. She was informed that Aster CMI Hospital would approach MOHAN Foundation for financial aid in an effort to save her beloved son’s life.

Anudaan Team closely considered the request and after receiving the required information and the relevant documents, decided to support Master Goutham BM with his liver transplant. MOHAN Foundation motivated the hospital to give some discount in transplant cost as the family’s economic condition is poor. MOHAN Foundation contributed 3 lakhs and with support from other NGOs, Goutham successfully underwent a liver transplant on September 17, 2021. The mother happily came forward to donate a portion of her liver for saving her son’s life. Both surgeries of mother and son were successful. 

“I am very happy now. I would like to express my happiness and gratitude towards MOHAN Foundation for saving my son’s life by giving financial support. Only because of MOHAN Foundation, my child is alive today. I am a poor lady, hardly able to feed my child, how could I then afford the transplant cost?  Now both my son and me are happy and slowly trying to come to a normal life. My special thanks to MOHAN Foundation.”- Madhulatha G, mother

Case story of Mr. Gowtham Phanitej

On July 3, 2021, MOHAN Foundation’s Anudaan team received an email from Kamineni Hospitals, Hyderabad requesting financial aid for Gowtham Phanitej’s kidney transplant. He was a patient of CKD stage V-ESRD (End-Stage Renal Disease) on maintenance Hemodialysis, Dilated Cardiomyopathy.  At this stage of CKD, the opportunity to treat a patient with drug therapy is almost lost. Hence, the doctors affirmed that kidney transplant is the only option for improving Gowtham’s heart function. Gowtham belongs to a poor family and the kidney transplant was required on an urgent basis and therefore the hospital took the responsibility to raise financial support for the transplant.

Anudaan Team was contacted by the hospital. After thorough discussion with the transplant coordinator at Kamineni Hospitals and Gowtham’s family members, Anudaan team decided to support the transplant and encouraged the hospital team to offer a discounted rate for Gowtham’s kidney transplant. MOHAN Foundation contributed Rs. 50,000 as the family had also raised some money through their friends and relatives. Gowtham successfully underwent kidney transplant on August 25, 2021.

Hailing from Kheratabad, Hyderabad, Gowtham Phanitej, age 32 is a true fighter whose strong will to survive and live his dreams again, made it possible for him to endure the transplant. He got married recently and was enjoying his new life with his spouse, K. Shyamalatha, when the news of his kidney failure turned the couple’s life upside down. It came as a big shock as Gowtham did not have any symptoms that indicated an imminent kidney failure. He even lost his job because of his deteriorating health condition. The burden to run the family came on Shyamalatha’s shoulder and she became the sole breadwinner in the family. She works as a Telecom Engineer in a private company, earning Rs. 25,000/per month.

In June, 2021, Gowtham started feeling pain in his lower abdomen and had persistently foamy urine. They went to ShriKanth Kidney Care situated in Vanasthalipuram, Hyderabad. After doing several tests, it was found that Gowtham’s creatinine level went upto 2.9 which was very high than normal level. He received further treatment and medicines from ShriKanth Kidney Care till February, 2021.

By the end of February, 2021 he was critically ill and was immediately admitted to Kamineni Hospitals, Hyderabad, where it was discovered that his creatinine level had gone up to 10 and both his kidneys had failed. This information stunned the couple. The doctors decided to put him on dialysis for some months with a hope of improvement in his health. He was on dialysis till August, 2021. Since no improvement in his health was observed, the doctors informed the couple that kidney transplant was the only option available for them in order to save Gowtham’s life. 

A huge part of the family’s money was already spent on Gowtham’s regular dialysis, pre transplant health checkups and other expenses of hospitalisation. It was difficult for them to pay the balance money to the hospital at the time of discharge. That is when; Gowtham’s wife, K. Shyamalatha and the hospital approached MOHAN Foundation for financial aid.

Gowtham is slowly resuming a normal life. As he lost a lot of time battling with chronic kidney disease, he is now determined to find a job and wants to be a successful executive in a reputed firm. 

Family testimonials:

“It is my honour and pleasure to thank MOHAN Foundation’s life-saving initiative Anudaan from the bottom of my heart for supporting my husband financially during his kidney transplant. You are the only Foundation that came forward and helped us financially when we were in dire need. It means a lot to us. All of us are now very happy only because of your support. MOHAN Foundation gives hope to many people and we strongly wish that your foundation continues its kind support to many people in future. I wish your Foundation reaches greater heights”- K. Shyamalatha, spouse

“My sincere heartfelt thanks to MOHAN Foundation for their financial help during my son’s kidney transplant. Our family was very fortunate that we received your valuable support at the times when our family was in a most tragic situation. With your support, my beloved son’s kidney transplant was done smoothly. Our family will always be thankful to your Foundation”- K. Nagamani, mother